Usually when people say that a goal is on their"桶列表这意味着在尚未计划的时间，也许更遥远，future,希望他们能在临死前做一些他们一直想做的事情：记忆，像悬挂式滑翔这样的拍照冒险，去异国他乡旅行，or even writing one's first novel.
但是今天我学到了一个非常不同的桶列表。丹和珍娜·海利，年轻的，费城充满信仰的父母，are expecting their first-born child next month.四月，他们得知他们的儿子，Shane Michael,有无脑症，这意味着他大脑的某些部位，可能还有头骨缺失，因此预计寿命不会很长。根据病情的严重程度，医生说他可能只活几个小时，也可能活一年多。为了在珍娜怀孕期间庆祝他，他们编制了一份自己最喜欢做的事情的清单。在当地新闻报道中，丹说：Most families wait until their baby is born to start making memories and traveling to places with them.We…knew that our time with our son could be very limited,so we wanted to make the most of the time that we had with him."“
At the time of this writing,Shane Michael在Jenna的子宫里35周大，and has been with his parents to many of the places that were significant to them as children: zoos,特拉华海滩，and an aquarium.他骑着著名的野林，NJferris wheel,参加家庭棒球比赛，和他的父母一起在圣殿祈祷。约翰·诺依曼和圣。Rita.He's"遇见“费城人和传单，喜欢热那亚的奶酪牛排，and made a field trip up to New York City,他们参观了自由女神像和帝国大厦，among other sites.He and his parents were also honored by friends and family members with a"shower of love"–在这些勇敢的父母的鼓励和支持下，一种不同类型的婴儿洗礼，以及对他们的小爱，severely disabled boy.
The Haleys have openly shared their adventures with over 100,千名追随者Prayers for Shane"Facebook page.他们写道：We are asking for your prayers and support and that God grants us as much time as possible with our beautiful son.谢恩已经向我们证明了，每一天都必须过得最充实，这正是我们这个小家庭所做的。”“
多么不可思议的见证生命的尊严！This beautiful couple resisted not only any pressure to abort Shane because of his medical condition,但同时也有把他藏起来的诱惑。Their story shows that every person deserves to be loved.与他人分享他们苦乐参半的旅程，他们和一个庞大的社区分享了他们的儿子Shane Michael，反过来，have rallied around the couple in their joys,sorrows,and fears.May their story be an encouragement to other families facing adverse prenatal diagnoses.
Deirdre A.McQuade is Assistant Director for Policy & Communications at the Secretariat of Pro-Life Activities,美国Conference of 亚博体育官方网Catholic Bishops.这篇文章最初出现在生活问题论坛上，经允许转载。